My Story

In April 2025, I will be running the TCS London Marathon for Chordoma UK, to help support individuals diagnosed with this very rare form of bone cancer to live a long and fulfilling life. 

Chordoma is one of a family of cancers called sarcoma. The bones involved are those at the base of the skull, the spine, the sacrum and coccyx.  Chordoma is thought to arise from a persistent embryonic tissue, which normally disappears before birth, but can persist in some people. Symptoms vary significantly but, in some cases, chordoma spreads agressively to areas including the liver, lungs, skin, bones or lymph nodes.

My much loved friend, Fleur, has been diagnosed with this condition. Having undergone a painful neurosurgical procedure, she is now midway through an arduous course of proton beam radiotherapy to her skull base. This is my way of showing that I'm with her on this difficult journey and to help support her and others like her to see the light at the end of the tunnel.

Your support will mean the world to me and to this small charity, which does so much to connect patients with Chordoma, to support them on their treatment journies and to enagage in the development of new therapies. 

At present, there is little funding available for research into this relentless disease, mainly because of it's rarity, so every pound you can donate will have a tremendous impact.  Thank you!