Ellen Lawless (CBL 🤪)
My Story
Hey Everyone.... It's the ultimate CRAZY BLONDE LADY here!!! ❤️🤪
So I have been so lucky to be offered a short notice London Marathon charity place running for the British Heart Foundation. ❤️
Thousands of children are born with Congenital heart defects every year, some are worse than others.... But there is one that is part of my world. My 8 year old daughter Annie ❤️ Annie was diagnosed at my 20week scan with a complex heart defect called Congenitally Corrected Transposition of the Great Arteries ( Cctga), Morpholigical right ventricle, straddled large VSD( by the tricuspid valve) and pulmonary stenosis. The fear was real. She was born at 38weeks and had her first Open Heart surgery at just 10weeks old by the incredible team at the East Midlands Congenital Heart Centre. Her second was close to follow at 7mths old. This was an atrial septostomy and the first part of her Fontan circulation called a Bi directional Glenn procedure.
Then in March 2020 at just 3 and a half years old she had the Fontan Completion. Annie now has a single ventricle heart circulation and takes the blood thinner Warfarin daily. This is a lifetime medication due to the gortex inserted during the last operation. The warfarin is thankfully managed between myself and the hospital to reduce visits. ❤️
Please feel free to search up or ask me about Annie if you would like to know more. Cctga takes up just 0.05% of Congenital heart defects.... That makes, her very special indeed 🥰
Now you will understand why I would choose to do this for the British Heart Foundation... Their research will be vital for Annie's future to see her into adulthood and support her through life. ❤️
Thank you so much for reading and supporting, I am soooo grateful 😘😘🥰🥰
