Rett UK

Jess Barber’s page

Jess Barber

Jess Barber

My Story

I'm running the London Marathon, on the day before I turn 30 (!!), for Rett UK...

Rett is a rare disorder that affects brain development in children, resulting in lifelong physical and mental disability. It's present from conception and can be difficult to diagnose - usually remaining undetected until major regression occurs at around one year of age. It could occur in any family and affects approximately 1 in 10,000 girls born each year and much, much rarer in boys.

My gorgeous niece, Summer, has Rett, which was officially diagnosed last year just before her fourth birthday. 

Summer is now five and will live with Rett for the rest of her life. She has such incredible parents, Helle (my cousin) and Kris, and a huge family around her to support her through her journey and make sure she enjoys every moment. Our Sums rarely stops smiling, she’s charismatic and a beautiful wee lass – anyone that’s has the pleasure to meet her will agree.

So, I’m running the London Marathon, for Summer and in hope that I can do my bit to help raise awareness and funding to support all that Rett UK does for those affected – children and families. 

Your donations will help me do that, so thank you very much for every bit of support you give. 

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About The London Marathon

The London Marathon has become an annual, inspiring and colourful fixture in the world’s sporting calendar since the inaugural race on 29 March 1981: a celebration of fun, fundraising and fancy dress.

Over the years more than a million people have completed the 26.2-mile course – which runs from Blackheath to The Mall, with a spectacular finish in front of Buckingham Palace, showcasing the very best that the capital city has to offer.

What’s more, these participants have raised over a billion pounds for charity and there have been countless amazing tales of human achievement throughout the event’s history – living up to its aim of helping participants ‘to have fun, and provide some happiness and sense of achievement in a troubled world’.

Rett UK

Raising for:

Rett UK
194%

Funded

  • Target
    £3,000
  • Raised so far
    £5,805
  • Number of donors
    168

My Story

I'm running the London Marathon, on the day before I turn 30 (!!), for Rett UK...

Rett is a rare disorder that affects brain development in children, resulting in lifelong physical and mental disability. It's present from conception and can be difficult to diagnose - usually remaining undetected until major regression occurs at around one year of age. It could occur in any family and affects approximately 1 in 10,000 girls born each year and much, much rarer in boys.

My gorgeous niece, Summer, has Rett, which was officially diagnosed last year just before her fourth birthday. 

Summer is now five and will live with Rett for the rest of her life. She has such incredible parents, Helle (my cousin) and Kris, and a huge family around her to support her through her journey and make sure she enjoys every moment. Our Sums rarely stops smiling, she’s charismatic and a beautiful wee lass – anyone that’s has the pleasure to meet her will agree.

So, I’m running the London Marathon, for Summer and in hope that I can do my bit to help raise awareness and funding to support all that Rett UK does for those affected – children and families. 

Your donations will help me do that, so thank you very much for every bit of support you give. 

//

About The London Marathon

The London Marathon has become an annual, inspiring and colourful fixture in the world’s sporting calendar since the inaugural race on 29 March 1981: a celebration of fun, fundraising and fancy dress.

Over the years more than a million people have completed the 26.2-mile course – which runs from Blackheath to The Mall, with a spectacular finish in front of Buckingham Palace, showcasing the very best that the capital city has to offer.

What’s more, these participants have raised over a billion pounds for charity and there have been countless amazing tales of human achievement throughout the event’s history – living up to its aim of helping participants ‘to have fun, and provide some happiness and sense of achievement in a troubled world’.